Wednesday, August 15, 2012
June and July updates
July 26, 2012
DearFamily and Friends,
Yesterday Janae and I traveled to the University of Washington in Seattle to meet with our several cancer doctors. We met with her Neurologist, Radiology Oncologist, and Neurosurgeon. They were all very concerned about the fast growth of a new tumor combined with the overall swelling throughout the brain attributed to a large tumor behind her left ear. We didn’t have a good report. It seems that many of the treatments that we previously felt were still options to utilize are no longer viable. Her Neurologist felt the best treatment to undertake presently is to use Avastin a chemotherapy type drug. However, use of this drug has significant chances of causing bleeding of the other tumors, which could cause severe and even life threatening responses.
Her Radiology Oncologist feels that dueto the global swelling and space taken up by the tumors themselves, that theuse of the Gamma Knife is very dangerous and may cause significant problems due to increased swelling which almost always follows treatment. This swelling could cause a stroke, aneurism, or series of bleeding of the tumors. He told us that he would be very reluctant to proceed with the Gamma Knife presently. We had considered surgery prior to meeting with the Neurosurgeon. He described the process necessary to remove the newer tumor, which basically would not be feasible until after removing the larger tumor surgically. The removal of the larger tumor would most likely make it so that Janae could no longer speak. This would be followed about a week later by the removal of the smaller (new) tumor would most likely make it so that she could no longer walk. Obviously we are not at all interested in surgery with these types of outcomes. He continued by stating that in his review of the recent MRI he could see that several of the other smaller tumors were starting to grow. Any of these could shortly become just as much of a threat as the newer tumor which is currently causing Janae so many problems. We met repeatedly with the doctors and at last came to the conclusion that we would use the Avastin to try to reduce the swelling. If this were successful, then the Radiology Oncologist would consider providing treatment of the newer tumor by use of the Gamma Knife. We felt good with this solution, even in light of the risks associated with use of Avastin.
These were very sobering discussions and the doctors repeatedly reminded us that none of these treatments would change her survival. This was very hard to hear since we have had such great response to the many different protocols that we have utilized over the past 3years. We have been very downhearted over receipt of this information. However, we continue to be upbeat about finding and using treatments that will still be beneficial for Janae. Janae very much dislikes being unable to care for herself and dependent on others for all of her care. We love Janae and also want to make sure that we do what is best for her.
We thank all of you for all of your prayers and encouragement. I know that we will most definitely need them now more than ever. We love you all,
Calvin and Janae
June 28, 2012
Dear Family and friends,
I wanted to just let all of you know that Janae has been deteriorating for some time. Lately her speech has gotten more labored and she just chooses not to talk very much because it is hard for her to think about the words to use. Her balance has also gotten much worse and she fell in the bathroom a few days ago. I believe all of her challengesare the result of the continuing large amount of inflammation in her brain. The doctors believe this could be the result of the after effects of the GammaKnife. We feel it could also be from the body fighting the cancer and just as in a wound, the infection is a sign of the fight going on. In any event the brain is not a good place to have the inflammation since it is difficult for the body to remove it from the brain.
From observing her, it seems that either the tumor, or the inflammation, or both have continued to grow. Neither one of these is good. Our doctors are also very concerned with the large amount of swelling that has been present in her brain now for many months. I feel that we need to do something now to help her condition. Since we have not found anything in the U.S. that seems to help reduce the inflammation, we have decided to go back to Tijuana, Mexico for some more of the treatments she received there. They will not harm her in any way and can only help. After the 2 trips we made for treatments last year, I recall that her inflammation seemedto be reduced. We hope to have the same results this time. We leave Sunday,July 1st and may be gone up to 30 days. We pray that all will go well for you and your families. Thank you for all you do for us and our family. We love you all,
Calvin and Janae
Sunday, May 20, 2012
Janae's Update 5/20/12
It is easier for me to share with you a recent email sent to our family members about my current condition. I sure appreciate your letters and all of the things that you do, and keeping me in your thoughts and prayers. Here is the contents of the email:
Dear Family,
Yesterday we traveled to Seattle so that Janae could have an MRI scan and to visit with her two doctors. Following the scan we met with both of her doctors together to discuss their assessment of her current scan. They felt that all of the 8 tumors were about the same size including the largest tumor. This was good news in that this largest tumor has appeared to stop growing. However, of greater concern is the continued large size of the inflammation and of its protrusion throughout her brain. Her symptoms seem to be about the same from the pressure the inflammation is creating on all of the brain, and specifically her speech and word retrieval sections of her brain. She has had continuing problems with her speech and word recollection. This pressure from the inflammation is still causing a shift of the midline of the brain of about .3 inches, pushing the midline of the brain and ventricules to the right side. The doctors both felt that this might be a good time to try Avastin, a drug which has been available for about 4 – 5 years. They feel that this may help significantly reduce the swelling (inflammation). Dr. Chamberlain has used this on about 15 patients over the past few years and said that about 75% of the time people have had good results, the other 25% of the time there really haven’t been any measurable results from the drug. However, like most drugs of this nature in up to 5% of the time there can be serious side effects such as stroke, heart attack or even death. We decided to continue as we are, since Janae is not currently threatened with the growth of the tumor or more increase of the inflammation, for the time being. We are going to consider the use of this drug to see if it might improve Janae’s quality of life and visit with the doctors in 3 more months when we return for another scan. It was good to visit with both doctors at the same time so that we could get a read on how they feel about her progress, situation, and their recommendations.
The doctors both believe the continuing large amount of inflammation is most likely evidence of continued treatment effects from the radiation involved in administering the Gamma Knife treatment. Janae and I believe it could be the result of the Gamma Knife treatment and also the effects of the alternative treatment that she has been pursuing since October last year. The doctors concur that it is most likely the result of the body fighting the cancer and the inflammation is the result of this continuing fight in her brain. The alternative treatment would be using this same process to kill the cancer cells and inflammation such as we are seeing is evidence that it is attempting to rid her brain of the cancer cells.
We felt good after meeting and reviewing the scans with Janae’s doctors. We feel they are very qualified and care about Janae and really want her to have the best care and the best quality of life. It is great to receive their support. They both felt she looked and acted remarkably well. Janae is doing quite well in spite of all that is going on in her brain. She continually amazes me as to her ability to continue with many things she wants to do in her life, when many with her condition would emotionally be checking out and just sitting around and wasting away. Even in light of not feeling well she still tries to be involved with our family members and being a good mother, wife, and homemaker. We know that much of her good results are from the many prayers and kind thoughts provided by all of you, our family, and friends. We appreciate these so much. We love you all,
Calvin and Janae
Dear Family,
Yesterday we traveled to Seattle so that Janae could have an MRI scan and to visit with her two doctors. Following the scan we met with both of her doctors together to discuss their assessment of her current scan. They felt that all of the 8 tumors were about the same size including the largest tumor. This was good news in that this largest tumor has appeared to stop growing. However, of greater concern is the continued large size of the inflammation and of its protrusion throughout her brain. Her symptoms seem to be about the same from the pressure the inflammation is creating on all of the brain, and specifically her speech and word retrieval sections of her brain. She has had continuing problems with her speech and word recollection. This pressure from the inflammation is still causing a shift of the midline of the brain of about .3 inches, pushing the midline of the brain and ventricules to the right side. The doctors both felt that this might be a good time to try Avastin, a drug which has been available for about 4 – 5 years. They feel that this may help significantly reduce the swelling (inflammation). Dr. Chamberlain has used this on about 15 patients over the past few years and said that about 75% of the time people have had good results, the other 25% of the time there really haven’t been any measurable results from the drug. However, like most drugs of this nature in up to 5% of the time there can be serious side effects such as stroke, heart attack or even death. We decided to continue as we are, since Janae is not currently threatened with the growth of the tumor or more increase of the inflammation, for the time being. We are going to consider the use of this drug to see if it might improve Janae’s quality of life and visit with the doctors in 3 more months when we return for another scan. It was good to visit with both doctors at the same time so that we could get a read on how they feel about her progress, situation, and their recommendations.
The doctors both believe the continuing large amount of inflammation is most likely evidence of continued treatment effects from the radiation involved in administering the Gamma Knife treatment. Janae and I believe it could be the result of the Gamma Knife treatment and also the effects of the alternative treatment that she has been pursuing since October last year. The doctors concur that it is most likely the result of the body fighting the cancer and the inflammation is the result of this continuing fight in her brain. The alternative treatment would be using this same process to kill the cancer cells and inflammation such as we are seeing is evidence that it is attempting to rid her brain of the cancer cells.
We felt good after meeting and reviewing the scans with Janae’s doctors. We feel they are very qualified and care about Janae and really want her to have the best care and the best quality of life. It is great to receive their support. They both felt she looked and acted remarkably well. Janae is doing quite well in spite of all that is going on in her brain. She continually amazes me as to her ability to continue with many things she wants to do in her life, when many with her condition would emotionally be checking out and just sitting around and wasting away. Even in light of not feeling well she still tries to be involved with our family members and being a good mother, wife, and homemaker. We know that much of her good results are from the many prayers and kind thoughts provided by all of you, our family, and friends. We appreciate these so much. We love you all,
Calvin and Janae
Sunday, April 1, 2012
A Wonderful Sabbath!
Today was the General Conference of The Church of Jesus Christ of Latter-Day Saints. We have the bless of hearing the Prophet of the church and some of the Apostles. It happen every 6 months. The other months we hear from them through the church magazines that come out once a month. It makes me very humble and teary eyed. I feel so much love for the Lord. It reminds me of the love the Savior has for me and you! Each day is such a speical blessing.
I love my dad and mom so very much. It's wonderful to have a great childhood, great brothers...Randee, Keith and Brett. My sisters Nancy and Shauna. How I treasure them. My husband Calvin, has been such a blessing...having our children, Stacia, Jared, Bergen, Monique, Judson and Colton. Each so different and dear to my heart. I pray for each one of them daily and their spouses and children. I am so thankful they have testimonies, love going to the temple and are working on a wonderful family and life together.
We did not have much of a winter, no much snow at all. The day's have been cool and windy a bit but some beautiful sunshine. We should be moving into Spring. I hope I feel well enough to do some work outside. I have missed the yard work.
Let me tell you about my laters appt. It was in Seattle on the 14th. My MRI was good. The tumor that in on my left side behide my eye has not grown, could even be a tiny bit smaller. The problem is that the unflamation has grown. It started last June as 18mm, went to 24, then 36mm, and had grown on the 14th to 41mm. Not the tumor but up and around it. The doctors may think that it could be from treatments. Also the center of the back of my brain skull is partially pushed to the side. Mostly likly from radiation and cheme. I have to concider that it is a pretty good report. They gave me a perc. for steriods again. That is so so bad for your body. Things I have studied and asked Leona says "NO." We got the steriods. I decided that I had to pray about it first. After 3 days it was "don't do it." I talked to Leona and she is sending some Herb that is from plants. I will get it on Tuesday. I also have 12 over herbs to start up on. I got back on my Stem Cell that I was on for 5 months when I was diognoices (sp). Leona told me if would be wonderful for me to get back of it. Tuesday I did and throw up for 2 hours, Saturday the same thing so she sent me the new Stem Cell that just came out. I took it yesterday along with a bunch of food, same as on Tuesday and Saturday....so sick. I need to have it in my brain but it is not my friend..co no more of that. It's all very tough. I am trying. I know the Lord will help me if I am suppose to win this fight.
We are going to Bergen and Jason's for Easter. Calvin wants to get out for a couple of days...so It is also Jada's birthday. She is turning 3 on April 11 so we will party on carrots and broillo for me.
I wish you a wonderful Easter. Remember our Heavenly Father. Always say your prayers and know that I pray for all of you. I appreicate your prays for me too!
JANAE
From my mom:
"BLESS MY UNBELIEF"
I love my dad and mom so very much. It's wonderful to have a great childhood, great brothers...Randee, Keith and Brett. My sisters Nancy and Shauna. How I treasure them. My husband Calvin, has been such a blessing...having our children, Stacia, Jared, Bergen, Monique, Judson and Colton. Each so different and dear to my heart. I pray for each one of them daily and their spouses and children. I am so thankful they have testimonies, love going to the temple and are working on a wonderful family and life together.
We did not have much of a winter, no much snow at all. The day's have been cool and windy a bit but some beautiful sunshine. We should be moving into Spring. I hope I feel well enough to do some work outside. I have missed the yard work.
Let me tell you about my laters appt. It was in Seattle on the 14th. My MRI was good. The tumor that in on my left side behide my eye has not grown, could even be a tiny bit smaller. The problem is that the unflamation has grown. It started last June as 18mm, went to 24, then 36mm, and had grown on the 14th to 41mm. Not the tumor but up and around it. The doctors may think that it could be from treatments. Also the center of the back of my brain skull is partially pushed to the side. Mostly likly from radiation and cheme. I have to concider that it is a pretty good report. They gave me a perc. for steriods again. That is so so bad for your body. Things I have studied and asked Leona says "NO." We got the steriods. I decided that I had to pray about it first. After 3 days it was "don't do it." I talked to Leona and she is sending some Herb that is from plants. I will get it on Tuesday. I also have 12 over herbs to start up on. I got back on my Stem Cell that I was on for 5 months when I was diognoices (sp). Leona told me if would be wonderful for me to get back of it. Tuesday I did and throw up for 2 hours, Saturday the same thing so she sent me the new Stem Cell that just came out. I took it yesterday along with a bunch of food, same as on Tuesday and Saturday....so sick. I need to have it in my brain but it is not my friend..co no more of that. It's all very tough. I am trying. I know the Lord will help me if I am suppose to win this fight.
We are going to Bergen and Jason's for Easter. Calvin wants to get out for a couple of days...so It is also Jada's birthday. She is turning 3 on April 11 so we will party on carrots and broillo for me.
I wish you a wonderful Easter. Remember our Heavenly Father. Always say your prayers and know that I pray for all of you. I appreicate your prays for me too!
JANAE
From my mom:
"BLESS MY UNBELIEF"
Thursday, March 1, 2012
A New Month!
Happy March! It's hard to believe that March is already here! It seems like our family was just getting ready for Jud and Melissa's wedding and all of the family was home for Christmas. We have had about 3 days of snow this winter. Today we are starting out with no snow, no rain, a good bit of wind and some sun.
I am feeling pretty good today. I have had some days that have made me struggle. I was able to get off my steroids. As much as I did not enjoy taking them it seemed to give me a little bit of energy. I hear that they last a while as they go through your body. I am watching different thinks take place. The red marks on my arms seem to be getting better. SLOWLY. Also my SWELLING! I am not as hungry and I seem to be sleeping better.
It looks like I go back over to Seattle for my scans to see what my brain is doing. I have had alot of reactions with my program from Dewayne. I just had my 4th injection on Tuesday. We will see what new things come up! I am not able to talk very good. We will see what the doctors tell me.
I would love your prayers. My big appt. and scans in Seattle is on March 14th with my MRI, Dr. Rockhill and Dr. Chamberline. Most likly some Lab tests. I have not been feeling good. My
reactions make me not able to see very well. I have had a tummy ache.
I love you all. I think I better sign off. I will let you know about the Seattle appointments.
Let's say you want more abundance of heart, happiness, positive relationships, money, and time. Draw the circle and, standing outside the circle, speak these startements out loud and throw them into the circle using your hands.
* I am grateful for my healthy body.
* I am experiencing my body as balanced and free of all disease.
* I am experiencing lots of energy and vitality.
* I am sleeping easily and I awake feeling refreshed and ready for a new day.
* I am thin and fit.
* I am grateful for the feelings of peace and well-being that abound in me.
* I am seeing the good in all of the events and details of my life.
* I am a positive person who enjoys the adventures of this life.
* I am creating more and more experiences that generate feelings of joy.
* I am attracting like-minded people with whom I love to interact.
* I am attracting people who are safe and respectful.
* I share myself easily and I am understood.
* I am experiencing my intimate relationships as blossoming and growing effortlessly.
* I am free of all debt.
* I am wealthy.
* I am successful.
* I am creating larger sums of money; money flows easily into my life.
* I am always flowing in more money than I am flowing out.
* I am comfortable with money, I spend it in integrity and have fun with it.
* I am generous in sharing my wealth because I always know there is plenty for others and me.
* I am experiencing that I have all the time I need.
* I move between the different activities of my day easily.
* I am always on time for my commitments.
* I am experiencing others as always on time for me.
* I flow easily within the structure of time in my day.
* I am grateful to be alive.
* I am creating more and more of what I want effortlessly.
* I am assisted by the powers and spirits of heaven. I ask for their help in all areas of my life. As I ask for what I want, they take care of orchestrating all the details and bring me what I have asked for. I am grateful for this powerful assistance.
Thank you, God, for assisting me in my creation. I appreciate all the spirits who are helping me experience the full measure of my creative powers.
I am feeling pretty good today. I have had some days that have made me struggle. I was able to get off my steroids. As much as I did not enjoy taking them it seemed to give me a little bit of energy. I hear that they last a while as they go through your body. I am watching different thinks take place. The red marks on my arms seem to be getting better. SLOWLY. Also my SWELLING! I am not as hungry and I seem to be sleeping better.
It looks like I go back over to Seattle for my scans to see what my brain is doing. I have had alot of reactions with my program from Dewayne. I just had my 4th injection on Tuesday. We will see what new things come up! I am not able to talk very good. We will see what the doctors tell me.
I would love your prayers. My big appt. and scans in Seattle is on March 14th with my MRI, Dr. Rockhill and Dr. Chamberline. Most likly some Lab tests. I have not been feeling good. My
reactions make me not able to see very well. I have had a tummy ache.
I love you all. I think I better sign off. I will let you know about the Seattle appointments.
Let's say you want more abundance of heart, happiness, positive relationships, money, and time. Draw the circle and, standing outside the circle, speak these startements out loud and throw them into the circle using your hands.
* I am grateful for my healthy body.
* I am experiencing my body as balanced and free of all disease.
* I am experiencing lots of energy and vitality.
* I am sleeping easily and I awake feeling refreshed and ready for a new day.
* I am thin and fit.
* I am grateful for the feelings of peace and well-being that abound in me.
* I am seeing the good in all of the events and details of my life.
* I am a positive person who enjoys the adventures of this life.
* I am creating more and more experiences that generate feelings of joy.
* I am attracting like-minded people with whom I love to interact.
* I am attracting people who are safe and respectful.
* I share myself easily and I am understood.
* I am experiencing my intimate relationships as blossoming and growing effortlessly.
* I am free of all debt.
* I am wealthy.
* I am successful.
* I am creating larger sums of money; money flows easily into my life.
* I am always flowing in more money than I am flowing out.
* I am comfortable with money, I spend it in integrity and have fun with it.
* I am generous in sharing my wealth because I always know there is plenty for others and me.
* I am experiencing that I have all the time I need.
* I move between the different activities of my day easily.
* I am always on time for my commitments.
* I am experiencing others as always on time for me.
* I flow easily within the structure of time in my day.
* I am grateful to be alive.
* I am creating more and more of what I want effortlessly.
* I am assisted by the powers and spirits of heaven. I ask for their help in all areas of my life. As I ask for what I want, they take care of orchestrating all the details and bring me what I have asked for. I am grateful for this powerful assistance.
Thank you, God, for assisting me in my creation. I appreciate all the spirits who are helping me experience the full measure of my creative powers.
Wednesday, February 1, 2012
Keeping my promise!
Good afternoon to everyone! We have had an usual winter. Not much snow or rain for that matter. Not even that cold. This week it has been around the 30 and 40's. Not bad for winter weather. We had a couple of days of snow. It was beautiful to watch and see it come down. The grandkids called Papa to see if they could come out to the house and snowmobile. Of course! We made some pizza and hot co. Had a great afternoon. The sun has been out a good part of the days and we have some wind but not too bad.
As far as my health I have been off and on. Today is a good day. I wish I could sleep. I get about 4 hours of sleep, interrputed. (My spelling is off so please read through it.) My biggest reaction to my treatment is I have sweats and then go to being cold. Also I have pain that go's across my forehead and on hope of my brain. The pain moves to the tumurs and in mean't to kill the cancer cells. It's what it's suppose to be doing so I am excited for that. I can certainly put up with pain to get well. I have one more week of steriods left. Calvin and I went to Seattle to see my doctors over there Jan. 11th. I think I may have told you. Had a good appt. They told me I didn't need to come back until March. That's a good report. They said my tumors are looking a tiny bit better, but I'm not over with them. I was not expecting to be. "Come on guys." They are not bearers of new news!
I feel in my heart that the Lord is blessing me so much. I could be so much worse. I am great! I continuely thank you for your prayers. What a wonderful blessing to belong to the church of Jesus Christ of Latter-day Saints. I am so thankful that I was raised in the church as a child, that I knew what was right and wrong. I have been so blessed with great brothers and sisters and my parents. Calvin has been such a blessing even before I got this cancer. Also my children who continue to call and pray for me. The lessons we have learned together as a family has taught us all so much. It is not something we would choose but something to learn from. Our trials stengthen our hope, faith and reliance upon the Lord.
ON NEST BUILDING
Mud is not bad for nest building.
Mud and sticks
And a fallen feather or two will do
And require no reaching.
I could rest there, with my little ones,
Sound for the season, at least.
But---
If I may fly awhile---
If I may cut through a sunset going out
And a rainbow coming back,
Color upon color sealed in my eyes---
If I may have the unboundaried skies
For my study
Clouds, cities, rivers for my rooms
If I may search the centuries
For melody and meaning
If I may try the sun.
I shall come back
Bearing such beauties
Gleaned from God's and man's very best
I shall come filled.
And then-----
Oh, the nest that I can build!
I love you all,
Janae
As far as my health I have been off and on. Today is a good day. I wish I could sleep. I get about 4 hours of sleep, interrputed. (My spelling is off so please read through it.) My biggest reaction to my treatment is I have sweats and then go to being cold. Also I have pain that go's across my forehead and on hope of my brain. The pain moves to the tumurs and in mean't to kill the cancer cells. It's what it's suppose to be doing so I am excited for that. I can certainly put up with pain to get well. I have one more week of steriods left. Calvin and I went to Seattle to see my doctors over there Jan. 11th. I think I may have told you. Had a good appt. They told me I didn't need to come back until March. That's a good report. They said my tumors are looking a tiny bit better, but I'm not over with them. I was not expecting to be. "Come on guys." They are not bearers of new news!
I feel in my heart that the Lord is blessing me so much. I could be so much worse. I am great! I continuely thank you for your prayers. What a wonderful blessing to belong to the church of Jesus Christ of Latter-day Saints. I am so thankful that I was raised in the church as a child, that I knew what was right and wrong. I have been so blessed with great brothers and sisters and my parents. Calvin has been such a blessing even before I got this cancer. Also my children who continue to call and pray for me. The lessons we have learned together as a family has taught us all so much. It is not something we would choose but something to learn from. Our trials stengthen our hope, faith and reliance upon the Lord.
ON NEST BUILDING
Mud is not bad for nest building.
Mud and sticks
And a fallen feather or two will do
And require no reaching.
I could rest there, with my little ones,
Sound for the season, at least.
But---
If I may fly awhile---
If I may cut through a sunset going out
And a rainbow coming back,
Color upon color sealed in my eyes---
If I may have the unboundaried skies
For my study
Clouds, cities, rivers for my rooms
If I may search the centuries
For melody and meaning
If I may try the sun.
I shall come back
Bearing such beauties
Gleaned from God's and man's very best
I shall come filled.
And then-----
Oh, the nest that I can build!
I love you all,
Janae
Friday, January 13, 2012
Happy New Year - 2012!
Good morning to all of you!
I know it's time for me to get on my blog. A new goal for 2012! I will be on once a month. I have wanted to write every week. December was full of Jud and Melissa's wedding, all our kids came home for it, of course and then Christmas came 2 days later. It was wonderful to have our house filled with "home."
My health has been up and down. New Year's Eve I was not feeling well. I could not talk. Calvin took me to the hospital. I was there almost 3 days. A great way to bring in the New Year. My nasty tumor, I have given the name "Charlie", had my brain inflamed everywhere and was causing it to bleed. My doctor in town was on call. He came up to the hospital, very concerned. He wanted to put us a helicopter and have brain surgury the next morning in SEATTLE. Calvin explained that we were doing some other treatments that was most likly causing my problems. He wasn't a fan of all this but that's alright. He wanted all the details. Calvin told him that it was not approved by the FDA. I told him that when you are fighting for your life you have to hit all the options. I don't think the medical doctors are use to or happy with people making their own decisions. They gave me 6 weeks. I just hit my 2 and half years last Wednesday.......thanks to our Heavenly Father. He has continued to bless and answer all our prayers.
Calvin and I went to Seattle to talk to Dr. Rockhill. He is the specialists over Radiation, Chemo. and my Gamma Knife. Dr. Chamberlin is the brain surgene. (I know all my spelling is not right, but this takes a while for me to type.) Dr. Chamberlin told me that he thought I was doing pretty good and no surgery now anyway. It would most likly give me a stroke or take away my speech and reading paths. They do the surgury while you are awake so you can answer their questions on what places they are cutting out are responding. We left Seattle happy and blessed to know it all well as good as expected. I am not a fan of steriods but see how they help. I was on a big dose for 11 days, down to 3 for 3 days and now on 2 a day. I will most likly stay on them off and on evey 2 weeks until the sweeling and bleeding in the scans are better. When they showed us the scans on Wednesday, I could not believe how clear my brain looked! It has very little white tumurs everywhere. I wanted to cry! It you do that, the doctors think you are in depression! Some days I am! Don"t go back for 2 months!!!!
No snow in Wenatchee. We need some! I have decided to keep my Christmas decorations up all year! They are alot of works for me to put up...expecially alone. They make me happy and fill my house up. What will everyone say now? I have very little company out here anyway so I think the noution of my craziness will not matter.
Time to get some laundry going. I thank you for all your cards, prayers that I continue to feel in my brain and heart. Also from those of you who deliver my oxygen water. Also my beautiful qoutes you leave in my living room with your visits. You are loved!
Oh, May My Soul Commune with Thee - Hymn
Oh, may my soul commune with thee
And find thy holy peace;
From worldly care and pain of fear,
Please bring me sweet release.
Oh, bless me when I worship thee
To keep my heart in tune,
That I may hear thy still, small voice,
And, thy sweet spirit find.
Lord, grant me thy abiding Love
And make my turmoil cease.
Oh, may my soul commune with thee
And find thy holy peace.
HAVE A WONDERFUL MONTH!
I know it's time for me to get on my blog. A new goal for 2012! I will be on once a month. I have wanted to write every week. December was full of Jud and Melissa's wedding, all our kids came home for it, of course and then Christmas came 2 days later. It was wonderful to have our house filled with "home."
My health has been up and down. New Year's Eve I was not feeling well. I could not talk. Calvin took me to the hospital. I was there almost 3 days. A great way to bring in the New Year. My nasty tumor, I have given the name "Charlie", had my brain inflamed everywhere and was causing it to bleed. My doctor in town was on call. He came up to the hospital, very concerned. He wanted to put us a helicopter and have brain surgury the next morning in SEATTLE. Calvin explained that we were doing some other treatments that was most likly causing my problems. He wasn't a fan of all this but that's alright. He wanted all the details. Calvin told him that it was not approved by the FDA. I told him that when you are fighting for your life you have to hit all the options. I don't think the medical doctors are use to or happy with people making their own decisions. They gave me 6 weeks. I just hit my 2 and half years last Wednesday.......thanks to our Heavenly Father. He has continued to bless and answer all our prayers.
Calvin and I went to Seattle to talk to Dr. Rockhill. He is the specialists over Radiation, Chemo. and my Gamma Knife. Dr. Chamberlin is the brain surgene. (I know all my spelling is not right, but this takes a while for me to type.) Dr. Chamberlin told me that he thought I was doing pretty good and no surgery now anyway. It would most likly give me a stroke or take away my speech and reading paths. They do the surgury while you are awake so you can answer their questions on what places they are cutting out are responding. We left Seattle happy and blessed to know it all well as good as expected. I am not a fan of steriods but see how they help. I was on a big dose for 11 days, down to 3 for 3 days and now on 2 a day. I will most likly stay on them off and on evey 2 weeks until the sweeling and bleeding in the scans are better. When they showed us the scans on Wednesday, I could not believe how clear my brain looked! It has very little white tumurs everywhere. I wanted to cry! It you do that, the doctors think you are in depression! Some days I am! Don"t go back for 2 months!!!!
No snow in Wenatchee. We need some! I have decided to keep my Christmas decorations up all year! They are alot of works for me to put up...expecially alone. They make me happy and fill my house up. What will everyone say now? I have very little company out here anyway so I think the noution of my craziness will not matter.
Time to get some laundry going. I thank you for all your cards, prayers that I continue to feel in my brain and heart. Also from those of you who deliver my oxygen water. Also my beautiful qoutes you leave in my living room with your visits. You are loved!
Oh, May My Soul Commune with Thee - Hymn
Oh, may my soul commune with thee
And find thy holy peace;
From worldly care and pain of fear,
Please bring me sweet release.
Oh, bless me when I worship thee
To keep my heart in tune,
That I may hear thy still, small voice,
And, thy sweet spirit find.
Lord, grant me thy abiding Love
And make my turmoil cease.
Oh, may my soul commune with thee
And find thy holy peace.
HAVE A WONDERFUL MONTH!
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