Wednesday, October 5, 2011

A NEW TREATMENT!

Dear family and friends,

Last night I got on my computer and typed a long blog to you. Right before I sent it out my elbow hit the kep pad and took the whole thing out. I was so upset. This is the kind of stuff that gives me anxiety and doesn't help me sleep. I will warn you now I am having a hard time with making my typing and words go together. My mouth can speak it but I can't spell it right...so please sound it out or this will take me forever!

Calvin and I found a new man that has a wonderful treatment system. We went to Salt Lake and met wil him over 3 days. He has his PhD as a Chemist. He has 2 machines and also provides injections. He sent us home with his Ozone (oxygen) machine that I use 3 times a day. It is very important to have lots of oxygen. My diet is alot like I have been on previously. He told me that I had to be detoxed before we started so I spent all of last week doing that and going through colonics like I did when I was first diagnosed. He told me that no medication could be taken. They would interfere with the program, so I got off my seizure pills and my hormones. I was a little nervous. I feel so much better being off them. Calvin has been working in his office at home a little more to make sure I'm ok. I had 3 mini-seizures. Nothing very big. I am not driving right now...again but it is worth it to stop taking the pills and have faith. It makes me happy. Many of you I'm sure think I am crazy, but it gives me hope and motivation to have a new program and someone new to work with that is not going to look at radiation, chemo, gamma knife, or surgery. A new option and I am a believer in the program and also this man. I go on line to my "Back-office" and log in the results for the day. He calls me throughout the day. I need to keep trying new approaches to beat the cancer.

He has cured many people from not only cancer but many diseases. All this can be adminstered at home. Thank you for your prayers and love. I feel them daily. I'll try to update my blog more often as I get more energy.

I love you all!


A NEW DIMENSION TO FAITH

When some new pain pieces my life
Rebellion begins to cry,
"God knew this would come and He approved"
But wait, long ago - so did I.

Tuesday, October 4, 2011

Thursday, August 18, 2011

Good Evening!

Hello to many of our loved ones. My typing is off and so is my spelling as we go through this together. I don't dare leave this page cause I am not sure I can get back to it.

I had a third gamma knife that caused a lot of swell and they thought my tumurs were bleeding. I was having mini-sieziers again. They put me on steriods...not a good feeling but they have improved may moter skills. I go over to Seattle within the next 2 weeks to have another MRI, check the brain size and shape and then go from there.

I going to end this now because I want to write a ending for us to all think about.

I have realized an important thing to remember is that your thoughtsare always creating your reality. It's up to us to be in charge or our thoughts, and consciously create a reality that is fulfilly. The alternativeis a relity that is unconscious and haphazard. It's always our choice. Complement your affirmations by starting your day positively. When you wake up imagine your spiritual crew of angelic support is present in your room waiting to meet with with you. Ask for their assists....bring you ideas of what you want, help you connect with like-minded people, help you be aware of your importance. Set an intention to partner with the LORD in creating a wonderful life. It can happen quickly.

I love you all. Thanks for your thoughts and prayers. Know that I am thinking of you.

Saturday, June 4, 2011

Scan in Seattle

Beautiful walk this morning. I thought for a week or so that Spring had missed Wenatchee but the wind is gone today and the temp. is nice and warm enough for me finally.

My scan was not as good as we were hoping. There are 7 tumors total and no swelling. (They kinda' skip over the good stuff) The one tumor they have been watching behind my left ear continues to be 'mad' as they call it. It was 10mm in January and measures 15mm now. They want me to have a CT scan to make sure nothing has shown up in my organs by now and then do another Gamma Knife. The CT scans of course, put 100 times the amount of radiation in your body and we are concerned about having another crazy doze of that. They don't want to do a Gamma Knife on me until I have one.

Calvin has done alot of reach for us and has me doing everything possible to be successful without the radiation and chemo. We are trying to decide if we should wait another month, have another Brain scan with Rockhill and see if the tumor has continued to grow with some of the new protocols we are now adding to my program. If it has, then we will go to Garrison for the CT scan and move to the Gamma Knife. What a difficult thing this is. I feel your prayers. Most days I feel postive and hopeful and then there is days of totally losing it. I am doing my best.

I love the Lord and blessings he continues to send to our family and also to you and yours.
I know everyone has trials and I sincerely mean this...I am not the worst. I think of all of you and want you to know I love you.

"Scatter Sunshine" - Hymn #230
In a world where sorrow ever will be known
Where are found the needy and the sad and lone,
How much joy and comfort you can all bestow,
If you scatter sunshine everywhere you go.

Slightest actions often meet the sorest needs
For the world wants daily little kindy deeds.
Oh, what care and sorrow you may help remove,
With your songs and courage, sympathy and love.

When the days are gloomy, sing some happy song;
Meet the world's repining with a courage strong.
Go with faith undaunted thru the ills of life;
Scatter smiles and sunshine o're itstoil and strife.

Scatter sunshine all along your way.
Cheer and bless and brighten every passing day!

Janae

Tuesday, May 31, 2011

ANOTHER SCAN

It's afternoon. My nap is over and I feel like I have some energy. That is a good thing because I go to Seattle tomorrow and those are always long days for us. It has been a while since I have been over there. I haven't seen Dr. Garrision here in Wenatchee since Oct. He told me to call him if I needed to....what does that mean? It has been almost 4 months I think since I have been to Seattle. I had an appointment last month and Calvin felt that since I was doing alright that we could push it pack a month which is tomorrow. Who is my main doctor? I believe his name is Dr. Calvin G. White. I know he is fighting the most for me so I will continue to prayer for inspiration for the both of us. I once aggain ask for your prayers also. You are the ones that seem to ask me the most how I am doing. I can't begin to start on each of you and what you mean to me..you cards, phone calls, e-mails,travels from California and Colorado. M family just finished the Bergeson reunion in Moses Lake this last week. A bit cold but just the right spirit for my week.

I do have some concerns that Calvins tells me not to worry about but with cancer there seems to be questions all the time. Each cramp in my body makes me question. When I feel dizzy or light headed, I question. My balance seems too have gotten worse. I had a wonderful March but April and May have been tough. I do believe I let my schedule from the past come out and it slowly reminds me who is in charge. My hair is slowly getting thin again.....I AM HERE AND HAPPY! I know the sleep and desire to have my daily nap will always be there. They say is one of the things cancer is fancy for.

I will continue to fight and say no more often and yes to things I enjoy one the good days whatever they may be. I will be back on here to give my results to you. Thanks again for your visits, smiles when I see you and your love.


Hymn #130
Be thou humble in thy weakness and the Lord thy God shall lead thee
Shall lead thee by the hand and give thee answer to thy prayers.
Be thou humble in thy pleading, and the Lord thy God shall bless thee
Shall bless thee with a sweet and calm assurance that he cares.

Be thou humble in thy calling, and the Lord thy God shall teach thee
To serve his children gladly with a pure and gentle love.
Be thou humble in thy longing, and the Lord thy God shall take thee,
Shall take thee home at last to ever dwell with him above.

Sunday, March 27, 2011

Off to Mexico

Good Morning to all of you! The sun is out, no wind and it's a beautiful day in Wenatchee. We looked the weather up in Mexico and it looks like it's in the 70"s during the day so hopefully we will hit some good weather there also. Calvin and and I about to leave the house for Tiquana once again. This trip is for 12 days instead of 21 days. I am so greatful. I feel the treatments have helped me or I wouldn't be going back. Calvin is taking his computer, of course, and we can use the email if you would like to send a message and we will also up-date you. It is cgwhite@televar.com. The phone calls are very expensive but we can also TXT. My phone number is 509-669-3890. I continue to ask for your prayers as I know they bless my mind and heart. Thank you so much for your friendship and love. Janae Though the world is often a dark and confusing place and, as we stumble through it, we faltar and trip into error and confusion. But then, when we feel our human limitations most painfully---whenever we come closest to despair--we can all look skyward, see the flash of lightning, and shout: "More light!"

Friday, March 18, 2011

It is a couple of days past Thursday but not months ...so I am improving on my timing of this. It seems like those trips to Seattle just poop me out. My scan shows that I have one tumor a bit bigger and one a bit smaller and the rest are stable which they are delighted about. I honestly was a bit disappointed. They told me not to worry about it but to go on how I am feeling which is the best I have felt in a long time.
Rockhill wants me back in 6 weeks instead of 2-3 months just to stay ahead of this one that seems alittle bigger.

I am getting my skin all looked over next week which I do every other month and you should at least once a year. I leave for Tiquana again in about 12 days. Can't believe it's already here. I do believe it has and is helping me. I think I talked about this in my last blog entry so I won't go on.
Keep your prayers in your heart for me and I will check in with you when I get home from Mexico which is around the 8th of April.

Love to you all
Janae

Leviticus 19:18
"Thou shalt not avenge, not
bear any grudge against the children of thy people, but thou shalt
love thy neighbor as thyself:
I am the LORD."

Tuesday, March 15, 2011

It's hard to believe that it is the middle of March. My son will be home from his mission from Guatemala in 44 days! That makes me happy! I believe all my kids will be here for the PARTY!Many things are making me happy. Stacia and Jean's baby is due next week and Monique and Byron are having their 3rd in August. My son Jared is graduating with his Masters in May. Bergen and Jason's had their triplets and they are all doing great.


I have had a great month as far as the cancer goes.. There could be many reasons. I have been juicing more each day, I began my exercise on a much smaller level, of course. I have been taking the supplements that Dr. Romero in Mexico told me to get on. Also a "Dendredic Cell" shot once a week for 13 weeks that Calvin has been giving me every Friday. My biggest change that I have noticed is my anxiety level when I am put on the spot. (teaching at church and playing the piano or organ) I actually am back on the organ at church. It's a very emotional thing for me to see some of the skills I use to have that are beginning to come back. I'm also sleeping better...so you can see I am improving and really can't single out one reason. I certainly don't want to leave the best part out, that I feel your prayers and thoughts and know I am being blessed from them.

I leave early in the morning for Seattle for another major brain scan so once again ask for you to think of me. I may not get this to you soon enough. I will post my results on Thursday.

It's wonderful to have great friends and family surrounding me. I feel you spirits every day when your faces cross my mind. I leave for Tiquana for our second round called the "booster." It is a 12 day visit instead of 21 days. I am so glad. That is too long for me to be away from everyone and home but I do feel it has helped me. We will see when they check my blood work how the infusions have affected my tumors. I hope it is positive. I believe that it will be because of improvement I feel. It's like the doctors say though, "Janae, you have cancer. It's sneaky." It makes me afraid to get my hopes up but then I remember to trust in the Lord.

Doctrine & Covenants 76:22
"And now, after the many testimonies which have been given of him, this is the testimony, last of all, which I give of him: That he lives!"

Love you all
Janae

Monday, February 14, 2011

Good morning to my dear family and friends,

It's hard to believe that the last time I was blogging was Thanksgiving. You can tell I'm great at the computer thing and it wears me out some keeping up with it. I want to do it because I know your prayers and love comfort and help me everyday. I really do appreciate you sincerely and know I wouldn't be doing as well as I am right now without them. Know that even though you may not hear from me as often as you should, I am still thinking of you and greatful you are beside me.

Calvin keeps his e-mails sending out information which helps me alot. Of course he doesn't have everyone's e-mail that I would include so I will do my best with a short version of the last 2 months.

My doctors in the states wanted to have me sign up to a clinical study they are trying to get cleared with FDA in the country. It has terrible side affects.....you are sick!! More than I am now. I asked what the benefits would be and they told me that 25% of the people that agree to go on the "ipi" increase their life by 4 months. WHAT? That is not worth it or good enough for me. I told tham that I wanted to pray about it. I asked what my other options were and they said back to chemo and radiation. Well, I don't want to ever go back to that, I say, but I guess I should never say never. My heart was so heavy for 4 days. I talked to my mom , certainly Calvin, a few close friends....kept prayering and reading my scriptures. I woke up on the 5th day and had an impression to call Leona who is my natural path who got me started when I was first diagnosed. She told me about a clinic/hospital in Tiquana that started in Greece and she knew of people who had gone over and are still having infusions once a year. She gave me the website. The more she told me the better I felt. The gut-ache left me and I realized it was an answer to my prayers....something natural, an option that had no side effects. That night Calvin and I went over all the information, called the IBC clinic the next morning and made reservations to go to Mexico. My doctor here in Wenatchee wasn't excited about my decision. I had to get my medical records from him. He said he had heard of people going over there and not having any success. He had told me 3 weeks earlier that I was running out of luck. So I thought, "Why not try something else." My heart felt about it so I decided it didn't mather to me what they felt. Dr. Garrison has been great to me and I just get my mind to jump another 6 months of chemo and be so ill.

We left Wenatchee about 4 days later, right after Thanksgiving and arrived in Mexico late that night. I started the infusions the next morning. They put them in your arm like an I.V. and they last about 4 hours. We met some wonderful, fun people there who we still stay in contact with. They helped the time to pass. The clinic has a dining room, very small that you eat your meals in and make your meals according to the type of cancer you have and the program you are on. It isn't just a clinic for cancer even though the most the patients do have some form of cancer. We were there 21 days. While you are there , my first day, they draw 13 fiels of blood and for the next 3 weeks while you are undergoing your infusions they spin it and treat it in a lab, adding an antibody to it. It's complicated for me to explain but it's called the "Dendretic Cell." The day before you leave they show you how to have your spouse, friend or whoever, yourself if need be...to inject this back into your body. It's your own immune system made stronger. They don not claim to cure you or heal you but to strengthen your immune system so it can kill the cancer. Very interesting. That's why there are no side effects. It's your own self being put back into your own self but treated, stronger and different. Calvin does my injections every Friday morning before he goes to work, once a week for the 13 weeks.

The first time you go is called the "crisis phase." The doctor you get assigned to you there determines how often you will come back. I go back every 4 months this first year and we will see how my blood and the cancer has responded thus far. When I arrived there my first day my immune system was a 4.9 count. Not so great. 6 is about the lowest. My second week there it had gone up to 4.0. My third week there it had gone up to 3.2. They drew my blood the day I left and Dr. Romero sent Calvin an email and told it was it perfect. It was 2.5. The best. This tells us that the infusions, the food and treats that I had received had worked well so far. This is exciting for me. Tiquana is not the place I want to hang out but it is for a while. calvin thought we would run on the beach and have some what of a vacation...sorry honey! It was freezing cold while we were there. I go back March 28th I believe. We haven't determined exactly what day but it is already time to go in for "Booster." It's only for 12 days now instead of 21. That was a long time to be gone.

We got home from Mexico 4 days belfore Christmas. Raced around to get myself ready, left for Blise to see Jason, Bergen and their swet triplets. We stayed through the New Year and drove home. I got the head crude with throat, ear, sinus...everything but the fever. I have been on the recovery mode since.

I knew this would not be short. Maybe that is why I have put it off but I did want to share it with you. I have felt very good the last 3 weeks and feel like the treatments are kicking in now. It's takes about 6-7 weeks they said. So... we continue to have faith and appreciate your prayers and love that you, our dear loved ones send our way.

"Remeber Me"
Remember me whenever you see a sunrise
Remember me whenever you see a star
Remember me whenever you see a rainbow
Or woods in autumn colors from afar.

Remember me whenever you see the roses
Or eagles sailing high in a sky of blue
Remember me whenever you see waves shining in the sun
And remember I'll be remembering you.

Remember me whenever you see a teardrop
Or meadows still wet with the morning dew
Remember me whenever you feel love growing in your heart
And remember I'll be remembering you!

(A song about our Heavenly Father)

Love Janae