HOT DANG! We have some great news. The scan of my organs came back clear! I thank all of you for your faith , concern and prayers and to those of you who participated in the fast. I have heard from some that I didn't send it out soon enough. Some days don't go so well.
They are going to start me on a higher dose of chemo that works along with the Gamma knife on Monday. They also believe it will strongly prevent any cancer to have a chance to spread. They still claim that it's a bit unusal to not see it anywhere else so I will continue to follow their recommendations.
I know many of you are calling. I don't answer my phone. All the caller ID's say "Washington" and it's too much for me to answer the phone every 10 minutes which is truly how often it rings. I need to put me first. I have a answering machine at home that I check often and many of you have my email, plus can respond on the blog. I hope one of those methods can help you keep in touch.
Thanks so much again for your love.
A challenge:
Find ways to recognize and remember God's kindness.
Thursday, October 22, 2009
Tuesday, October 20, 2009
Be Grateful For Memories and Moments
Good morning to you all! It's nice to have my communication back (computer)and see that my hands are working well. It's something I pay close attention to these days, not that I didn't before but it's a blessing so easily taken for granted. Be grateful!
Bergen helped me out last week on this but let me cover it just a bit. I had my Gamma Knife treatment on Thursday. Dr. Rockhill said it went as well as they expected. They treated 8 tumors and now we will see along with the radiation that I had last month here in town what benefits it will give my body. I go to the Wenatchee Valley Clinic Wednesday, tomorrow, for the rest of my body to make sure there are no other sources popping up. Our family is going to fast starting Wednesday morning until 4:00. Please do not feel that you have to participate in all these actions. For you to be reading this, it makes me feel that I should at least inform you if you feel inclined. I feel maybe I should explain why "a fast." and not just prayer. Prayers are still great and wonderful. As you may know from the Bible they fasted. Fasting puts your PHYSICAL body and mind in what I like to call a rememberance mode. You are going without food and that doesn't happen easily for most of us. The SPIRITUAL side causes us to think, have humility, draw closer to our Heavenly Father as we pray and refrain from food. I hope that gives you a little more understanding. Be grateful for your health even if it is not what you would like it to be!
AND......Also over the weekend Stacia and (Jon)Jean Zintz became engaged!!!!! I'm not sure sure how to spell his last name. That's crazy. They are totally in love and so right for each other. Direct questions to her. I was in Seattle and then home and have not seen her much. He flew out yesterday. We are thrilled that Stacia is so happy. Brielle loves him too. The Lord does provide at times when we would choose different for ourselves. Be grateful!
I want to close my blog with a wonderful, beautiful primary song that the children from the age of 3-11 learn in at church. When I was young my mother was the chorister and taught it to me. It has always made it extra special for me.
"Whenever I Hear The Song Of A Bird"
Whenever I hear the song of a bird
Or look at the blue, blue sky
Whenever I feel the rain on my face
Or the wind as it rushes by
Whenever I touch a velvet rose
Or walk by our lilac tree
I'm glad that I live in this beautiful world
Heavenly Father created for me.
He gave me my eyes that I might see
The color of butterfly wings
He gave me my ears that I might hear
The magical sound of things.
He gave me my life, my mind, my heart:
I thank him reverently
For all his creations, of which I'm a part
Yes, I know Heavenly Father loves me.
BE GRATEFUL!
Bergen helped me out last week on this but let me cover it just a bit. I had my Gamma Knife treatment on Thursday. Dr. Rockhill said it went as well as they expected. They treated 8 tumors and now we will see along with the radiation that I had last month here in town what benefits it will give my body. I go to the Wenatchee Valley Clinic Wednesday, tomorrow, for the rest of my body to make sure there are no other sources popping up. Our family is going to fast starting Wednesday morning until 4:00. Please do not feel that you have to participate in all these actions. For you to be reading this, it makes me feel that I should at least inform you if you feel inclined. I feel maybe I should explain why "a fast." and not just prayer. Prayers are still great and wonderful. As you may know from the Bible they fasted. Fasting puts your PHYSICAL body and mind in what I like to call a rememberance mode. You are going without food and that doesn't happen easily for most of us. The SPIRITUAL side causes us to think, have humility, draw closer to our Heavenly Father as we pray and refrain from food. I hope that gives you a little more understanding. Be grateful for your health even if it is not what you would like it to be!
AND......Also over the weekend Stacia and (Jon)Jean Zintz became engaged!!!!! I'm not sure sure how to spell his last name. That's crazy. They are totally in love and so right for each other. Direct questions to her. I was in Seattle and then home and have not seen her much. He flew out yesterday. We are thrilled that Stacia is so happy. Brielle loves him too. The Lord does provide at times when we would choose different for ourselves. Be grateful!
I want to close my blog with a wonderful, beautiful primary song that the children from the age of 3-11 learn in at church. When I was young my mother was the chorister and taught it to me. It has always made it extra special for me.
"Whenever I Hear The Song Of A Bird"
Whenever I hear the song of a bird
Or look at the blue, blue sky
Whenever I feel the rain on my face
Or the wind as it rushes by
Whenever I touch a velvet rose
Or walk by our lilac tree
I'm glad that I live in this beautiful world
Heavenly Father created for me.
He gave me my eyes that I might see
The color of butterfly wings
He gave me my ears that I might hear
The magical sound of things.
He gave me my life, my mind, my heart:
I thank him reverently
For all his creations, of which I'm a part
Yes, I know Heavenly Father loves me.
BE GRATEFUL!
Monday, October 12, 2009
The things I am learning!
Hello to everyone. This is Janae. Calvin is home and sharing his computer with me tonight. This is my chance to give my own update. I appreciate Bergen for filling in for me. I have not been ignoring you but am waiting for a new hard drive for my computer.
Bergen covered the procedures that are coming up for me this week. I qualifiy for it because the tumors in my head have not grown and also there are no new ones. The procedure involves radiation which is done from the outside of my head. Each of the larger tumors will be zapped with radiation individually for a certain amount of time. They find the procedure is about 85% successful. They don't know the details of the treatment until we have our consultation on Wednesday afternoon. The treatment procedure is Thursday morning. The following week I have a complete scan of my body to make sure there is no other source of cancer through the rest of my body. I believe the date is the 22nd. Then we will decide with the doctors where we go from there.
I want to share some things I am learning:
Do not make a plan when it involves cancer. Each day is new. I look back on our planned month of September. We had our trip to Snowbird cancelled, moved Judson's flight home from his mission into Wenatchee. I had radiation and chemotherapy to get my motor skills working better, etc....all keeps your faith moving forward. Still a good month to make better.
People have a hard time sharing computers. Everyone does everything on them now.
We apologize about things not necessary. We say "sorry" that we don't send a card or make a phone call. "I had planned to but didn't ....." No one knows your expecations for you and most don't expect them. Don't give yourself the guilt or the excuse. Life is so much better....enjoy!
Do the right thing at the right time even when it seems like something simple. It can make a huge difference.
We have a right to change our minds. I chose not to have radiation and chemo. but as I started to have some motor skills problems I told Calvin it is like anything in life. "If you keep doing the same thing, you get the same results." I had to change my mind even though I had planned on not having these treatments. It has helped me and was the right thing for me to do.
Tears make many people uncomfortable. Tears have many meanings. It can be a sharing of something sacred, special, happy or sad. There are many wonderful stories and thoughts shared through tears. Follow your heart!
Being physically "lean" is not from your workouts at the gym as much as it is from your nutrition.. We get all stressed out about our must-have-routine at the gym....many don't enjoy and drag themselves to it, delighted when they walk out. I have found that vegetables and fruit trim you right down in a very heathy way.
I don't know how to cut and paste on this computer so I will leave this like it is and get it mailed off to you.
On my first blog post I mentioned something about "the old Janae" and the "new Janae." I remember stating that I already could see the "new Janae" was going to be a new, improved version. I see it differently now. The "old Janae" is my tri-cycle, with training wheels and a foundation of who I am and where I am going. I am learning to add a bigger bike and eventually get back to my clip-on peddles. I'm glad you are taking this ride with me. Thanks for your continued prayers, love and faith.
St. John 16:33
"These things I have spoken unto you, that in me ye might have peace. In the world ye shall have tribulation: but be of good cheer; I have overcome the world.
Love to you all,
Janae
Bergen covered the procedures that are coming up for me this week. I qualifiy for it because the tumors in my head have not grown and also there are no new ones. The procedure involves radiation which is done from the outside of my head. Each of the larger tumors will be zapped with radiation individually for a certain amount of time. They find the procedure is about 85% successful. They don't know the details of the treatment until we have our consultation on Wednesday afternoon. The treatment procedure is Thursday morning. The following week I have a complete scan of my body to make sure there is no other source of cancer through the rest of my body. I believe the date is the 22nd. Then we will decide with the doctors where we go from there.
I want to share some things I am learning:
Do not make a plan when it involves cancer. Each day is new. I look back on our planned month of September. We had our trip to Snowbird cancelled, moved Judson's flight home from his mission into Wenatchee. I had radiation and chemotherapy to get my motor skills working better, etc....all keeps your faith moving forward. Still a good month to make better.
People have a hard time sharing computers. Everyone does everything on them now.
We apologize about things not necessary. We say "sorry" that we don't send a card or make a phone call. "I had planned to but didn't ....." No one knows your expecations for you and most don't expect them. Don't give yourself the guilt or the excuse. Life is so much better....enjoy!
Do the right thing at the right time even when it seems like something simple. It can make a huge difference.
We have a right to change our minds. I chose not to have radiation and chemo. but as I started to have some motor skills problems I told Calvin it is like anything in life. "If you keep doing the same thing, you get the same results." I had to change my mind even though I had planned on not having these treatments. It has helped me and was the right thing for me to do.
Tears make many people uncomfortable. Tears have many meanings. It can be a sharing of something sacred, special, happy or sad. There are many wonderful stories and thoughts shared through tears. Follow your heart!
Being physically "lean" is not from your workouts at the gym as much as it is from your nutrition.. We get all stressed out about our must-have-routine at the gym....many don't enjoy and drag themselves to it, delighted when they walk out. I have found that vegetables and fruit trim you right down in a very heathy way.
I don't know how to cut and paste on this computer so I will leave this like it is and get it mailed off to you.
On my first blog post I mentioned something about "the old Janae" and the "new Janae." I remember stating that I already could see the "new Janae" was going to be a new, improved version. I see it differently now. The "old Janae" is my tri-cycle, with training wheels and a foundation of who I am and where I am going. I am learning to add a bigger bike and eventually get back to my clip-on peddles. I'm glad you are taking this ride with me. Thanks for your continued prayers, love and faith.
St. John 16:33
"These things I have spoken unto you, that in me ye might have peace. In the world ye shall have tribulation: but be of good cheer; I have overcome the world.
Love to you all,
Janae
Wednesday, October 7, 2009
It's fall and one month closer to Christmas!
Judson is home! We all went to the airport to greet him - it is so great to have him back!
By the way, this is Bergen. Mom wanted me to post a quick note for her. Her computer is down and she knows there are several of you trying to stay in touch and updated, so I'll help you out. Mom finished her 10 days of radiation and had another MRI. It showed no new growths, which is good news, but there is still cancer and we want to get rid of it. So her next treatment will be next week in Seattle and is a procedure called the gamma knife. It is not invasive, even though it has a scary name. It is painless and is basically a really strong dose of radiation to each individual tumor. She will be awake the whole time. It is a one-time treatment and we are excited to have found a great doctor to perform it. If you want more details on the gamma knife, you can visit gammaknife.org and watch the video on the procedure. It's not long, but is a great visual explanation. I won't go into much detail on Mom, she wants to do that herself soon. Just know that we are doing fine. We love you all and appreciate your continued love, support and prayers!
By the way, this is Bergen. Mom wanted me to post a quick note for her. Her computer is down and she knows there are several of you trying to stay in touch and updated, so I'll help you out. Mom finished her 10 days of radiation and had another MRI. It showed no new growths, which is good news, but there is still cancer and we want to get rid of it. So her next treatment will be next week in Seattle and is a procedure called the gamma knife. It is not invasive, even though it has a scary name. It is painless and is basically a really strong dose of radiation to each individual tumor. She will be awake the whole time. It is a one-time treatment and we are excited to have found a great doctor to perform it. If you want more details on the gamma knife, you can visit gammaknife.org and watch the video on the procedure. It's not long, but is a great visual explanation. I won't go into much detail on Mom, she wants to do that herself soon. Just know that we are doing fine. We love you all and appreciate your continued love, support and prayers!
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