Happy Thanksgiving to all of you! Every day needs to be a thanks giving day. We all know that. I want to keep you posted on my procedures that I have decided on. Calvin and I are leaving for Seattle early Sunday morning to go to Tiquina, Mexico for a treatment that I feel better about.
The procedure involves drawing blood from me. RNA-loaded Dendritic cell vaccines start with precursors which, when matured for the vaccine, are currently considered the most effective antigen-presenting cells within the immune system. They are then able to amplify tumor RNA from me, whether from the primary tumor site, distant metastatic sites, (my brain) or from tumor cells present in the circulation and transfect my DC's with my tumor RNA. This process offers the ability for most cancer types at any stage of disease to be target opportunities for this cancer vaccine. At this point they have created a weapon which, when injected into me as an infusion, will act as a cellular "smart-bomb_ in modern defense parlances.
Yes, it does sound complicated. I have been on the phone with the hospital in Mexico through this week, Calvin also. The doctors here are telling me of course they are not be takers of this...no surprise. They don't have an other options for me except more chemo and the "ipi". Neither of them are good for me so..... my prayers and heart are directing me this way. The Biocure hospital does not promise a cure but more of a healing process than than what I have left.
Once again I ask for your prayers. I know I have your love and concern. It means so much. Calvin will have his computer and we can email. I have to be down there for 3 weeks for these infusions which gets me home Dec. 18th. HO,HO,HO HAPPY HOLIDAYS!
Count Your Blessings and be grateful!
cgwhite@televar.com
Janae
Friday, November 26, 2010
Thursday, November 11, 2010
Seattle scan & "ipi"
Good morning to everyone:
Calvin and I had an adventure and long day yesterday but GREAT! We started at a new place for my MRI because they didn't have time for my appointment where I usually go at the University of Washington hospital.
Then we went over to U. of Wash. and waited 2 hours to see Dr. Rockhill. Sara, his assistent came in with a huge smile after we were in the room waiting over an hour and said "do you want the good news?" What a relief. She brought up all the tumors on the screen. She told me the one Rockhill did the gamma knife on last month was a bit smaller. Everything was stable which is good in their eyes. Of course I want some shrinkage!. "Patience my dear," my mom would be saying! Dr. Rockhill came in. Said it looked good and he thought the tumor seemed to be responding. We asked him some questions about the "ipi". He said he difinately thought it to be the next best step but this new Dr. Thompson that we were going to meet afterwards would be the pro to anser my questions.
We left his office at 3:00. Drove about 30 minutes to the Cancer Alliance Center. Waited there and got in to visit with him. He explained everything to us and answered our questions. I told him that I was worried about the side affects from the "ipi". It is a trial test that has been out for 8 years but not approved by the FDA. It's sppose to be out in March. On a scale of 0 - being great and 4 - being lousy in health, they only take the cancer melanoma patience that are in the 0 & 1 range which would make me a candidate. He says they have dropped the infusion dose from 10, 3, or 1. You usually don't get side affects until after the 3rd infusion. Or sometimes they don't come until later but do not last a life time. He told us that it is certain more promising then goin back through another round of Chemo. The cancer will keep coming back. The "ipi" is much more promising. He said "Janae the chemo makes you sick also." True. He gave us a 3 ring binder FULL of stuff to go over. I asked him if I was his wife what would he do. He said he understood the tough decision but he would have her do it because it can improve the risk of cancer throughout the organs and not just the brain. It last 4 months and you go over there for the infusion every 3 weeks.
I know you have other people to pray for but please keep me in your prayers. We are thinking we may go ahead and do it. We signed the consent form yesterday because Dr. Thompson also has to sign it in your presents. We can always back out but decided to save us another trip we would do it while we were there. He checked me over and said I was great but he needed a HIV blood test and some other scary ones ran. We went down to the lab and of course, if you don't know my history, I don't like giving my blood away. They got there best man there. I have learned to give a warning before they just call me back. He poked me 5 times and kept telling me how sorry he was. By now it was 6:15 and the lights were flickering off. He got 1 tube and said they would see if it was enough.
Got home after Calvin took me to a nice dinner and ctrawed in bed about 11:00...a long day for me and I didn't even drive!
We love you all so much and appriecate your thoughts and interest this fight for life!
Janae
Hymn
"Sweet hour of pray, sweet hour of prayer!
That calls me from a world of care,
And bids me at my Father's throne
Make all my wants and wishes known.
In seasons of distress and grief
My sould as often found relief
And oft escaped the tempter's snare
By thy return,
Sweet hour of prayer!
Sweet hour of prayer, sweet hour of prayer!
Thy wings shall my petition bear
To him whose truth and faithfulness
Engage the waiting soul to bless.
And since he bids me seek his face,
Believe his word and trust his grace,
I'll cast on him my every care
And wait for thee, sweet hour of prayer!
Calvin and I had an adventure and long day yesterday but GREAT! We started at a new place for my MRI because they didn't have time for my appointment where I usually go at the University of Washington hospital.
Then we went over to U. of Wash. and waited 2 hours to see Dr. Rockhill. Sara, his assistent came in with a huge smile after we were in the room waiting over an hour and said "do you want the good news?" What a relief. She brought up all the tumors on the screen. She told me the one Rockhill did the gamma knife on last month was a bit smaller. Everything was stable which is good in their eyes. Of course I want some shrinkage!. "Patience my dear," my mom would be saying! Dr. Rockhill came in. Said it looked good and he thought the tumor seemed to be responding. We asked him some questions about the "ipi". He said he difinately thought it to be the next best step but this new Dr. Thompson that we were going to meet afterwards would be the pro to anser my questions.
We left his office at 3:00. Drove about 30 minutes to the Cancer Alliance Center. Waited there and got in to visit with him. He explained everything to us and answered our questions. I told him that I was worried about the side affects from the "ipi". It is a trial test that has been out for 8 years but not approved by the FDA. It's sppose to be out in March. On a scale of 0 - being great and 4 - being lousy in health, they only take the cancer melanoma patience that are in the 0 & 1 range which would make me a candidate. He says they have dropped the infusion dose from 10, 3, or 1. You usually don't get side affects until after the 3rd infusion. Or sometimes they don't come until later but do not last a life time. He told us that it is certain more promising then goin back through another round of Chemo. The cancer will keep coming back. The "ipi" is much more promising. He said "Janae the chemo makes you sick also." True. He gave us a 3 ring binder FULL of stuff to go over. I asked him if I was his wife what would he do. He said he understood the tough decision but he would have her do it because it can improve the risk of cancer throughout the organs and not just the brain. It last 4 months and you go over there for the infusion every 3 weeks.
I know you have other people to pray for but please keep me in your prayers. We are thinking we may go ahead and do it. We signed the consent form yesterday because Dr. Thompson also has to sign it in your presents. We can always back out but decided to save us another trip we would do it while we were there. He checked me over and said I was great but he needed a HIV blood test and some other scary ones ran. We went down to the lab and of course, if you don't know my history, I don't like giving my blood away. They got there best man there. I have learned to give a warning before they just call me back. He poked me 5 times and kept telling me how sorry he was. By now it was 6:15 and the lights were flickering off. He got 1 tube and said they would see if it was enough.
Got home after Calvin took me to a nice dinner and ctrawed in bed about 11:00...a long day for me and I didn't even drive!
We love you all so much and appriecate your thoughts and interest this fight for life!
Janae
Hymn
"Sweet hour of pray, sweet hour of prayer!
That calls me from a world of care,
And bids me at my Father's throne
Make all my wants and wishes known.
In seasons of distress and grief
My sould as often found relief
And oft escaped the tempter's snare
By thy return,
Sweet hour of prayer!
Sweet hour of prayer, sweet hour of prayer!
Thy wings shall my petition bear
To him whose truth and faithfulness
Engage the waiting soul to bless.
And since he bids me seek his face,
Believe his word and trust his grace,
I'll cast on him my every care
And wait for thee, sweet hour of prayer!
Tuesday, November 9, 2010
Good afternoon to some of my favorite people....family and friends. It's hard to believe Fall is here almost Winter and another 4 weeks has gone by. Bergen just had her triplets and Jud took me to boise for a two day "rock and hold" trip. They are well and Bergen went home lastnight. The babies will be there until around Thanksgiving. Even though means many times to the hospital which is 20 minutes away, it will give her some rest time. We left Judson there to help with Jada. She is 18 months. The house will be busy but so happy and blessed they feel for answered prayer.
I am on my way tomorrow early to have lab work done, another MRI on my brain and meet with a new doctor, Dr. Thompson. They are proposing a clinical study for me. I haven't made up my mind yet because I need more information from Dr. Thompson who I will meet tomorrow. The percentages of a cure or a better life do not impress me. The side effects are severe as they say. Diaherra, arthritis, which I already have, pitary gland problems, skin rashes, swellin in the eyeballs. Not a great quality for life. I am doing better then most that go on this.
It's called "Ipilimumah" Ipi for short. There is quite a bit of information on line about it. They will go over my results from my last gamma knife that I had Oct. 7 and then we will see what needs to happen. I guess it's good to always have something to pray about and draws us closer to our Heavenly Father.
Think of me tomorrow and remember in your prayers. They mean so much to our family.
MATTHEW 5:13-16
"Ye are the salt of the earth but if the salt have lost it's savor, wherewith shall it be salted?
it is thenceforth good for nothing, but to be cast out, and to be trodden under foot of man.
Ye are the light of the world. A city set on a hill cannot be hid. Neither do men light a candle and put in under a bushel, but on a candlestick; and it giveth light unto all that are in the house.
Let your light so shine before men, that they may see your good works and glorify your Father which is in heaven."
I'll write Friday morning. We usually get home to late. It's a long day!
love to you all
Janae
I am on my way tomorrow early to have lab work done, another MRI on my brain and meet with a new doctor, Dr. Thompson. They are proposing a clinical study for me. I haven't made up my mind yet because I need more information from Dr. Thompson who I will meet tomorrow. The percentages of a cure or a better life do not impress me. The side effects are severe as they say. Diaherra, arthritis, which I already have, pitary gland problems, skin rashes, swellin in the eyeballs. Not a great quality for life. I am doing better then most that go on this.
It's called "Ipilimumah" Ipi for short. There is quite a bit of information on line about it. They will go over my results from my last gamma knife that I had Oct. 7 and then we will see what needs to happen. I guess it's good to always have something to pray about and draws us closer to our Heavenly Father.
Think of me tomorrow and remember in your prayers. They mean so much to our family.
MATTHEW 5:13-16
"Ye are the salt of the earth but if the salt have lost it's savor, wherewith shall it be salted?
it is thenceforth good for nothing, but to be cast out, and to be trodden under foot of man.
Ye are the light of the world. A city set on a hill cannot be hid. Neither do men light a candle and put in under a bushel, but on a candlestick; and it giveth light unto all that are in the house.
Let your light so shine before men, that they may see your good works and glorify your Father which is in heaven."
I'll write Friday morning. We usually get home to late. It's a long day!
love to you all
Janae
Tuesday, October 5, 2010
Wednesday - Harbor View Hospital
Good morning to all of you!
I continue to ask for your faith and prayers. We are going to Harbor View for an gamma knife. It will be Thursday morning early. I have to be there at 6:30 a.m. I will post a blog Friday or Saturday....I promise. I appreciate all the blessings I have been given this first year of this cancer diagnois. As hard has it is to always thin of myself and take of me, I have had a great year of blessings.
In the Doctrine & Covenants chapter 14, verse 7:
And if you keep my commandments and endure to the end you shall have eternal life, which gift is the greatest of all the gifts of God.
i love and appreciate you all. May you also be blessed and protect through your channagnes and trials. I know we all have them. I also pray for you.
Janae
I continue to ask for your faith and prayers. We are going to Harbor View for an gamma knife. It will be Thursday morning early. I have to be there at 6:30 a.m. I will post a blog Friday or Saturday....I promise. I appreciate all the blessings I have been given this first year of this cancer diagnois. As hard has it is to always thin of myself and take of me, I have had a great year of blessings.
In the Doctrine & Covenants chapter 14, verse 7:
And if you keep my commandments and endure to the end you shall have eternal life, which gift is the greatest of all the gifts of God.
i love and appreciate you all. May you also be blessed and protect through your channagnes and trials. I know we all have them. I also pray for you.
Janae
Friday, October 1, 2010
Dear family,
Janae has been doing well the past month or so and lately seems to be increasing her stamina day by day. Yesterday we went to the University of Washington for her latest MRI scan. We met with her oncologist, Dr. Rockhill.
He told us that yesterdays scan shows some items of concern. One of the tumors today was the size of your thumbnail. Previously it had not been detected or even tracked because it was so small that it was not a concern. Another one of the tumors that had been treated with the Gamma Knife radiation last October had additional swelling around it and it is too a concern. Dr. Rockhill said this is precisely why he recommends that we have an MRI performed every 3 months so that we can detect any new tumors or any tumors that are growing. The good news is that none of the other seven tumors which were previously treated with the Gamma Knife procedure (last October) have grown. In fact many of them have continued to shrink significantly since the last MRI scan in June.
We are discouraged that any of the tumors have grown at all, but believe it is due to Janae's having had such great results for this entire last 11 1/2 months since her last Gamma Knife procedure. Dr. Rockhill strongly suggests that Janae recieve the Gamma Knife radiation treatment again for the second time. We are in agreement and have made arrangements for this to happen next Thursday, October 9th.
We want you to know that we feel very blessed that her progress has been so significant. We continue to recieve so many kind encouragements and thank all of you for your thoughts and prayers. We know they make a huge difference in the outcome. We are very thankful for each day and for her continued progress in so many ways. We appreciate all of your expressions of love, thoughtfulness, and kindness and we go through these difficult times. Your prayers and friendship mean the world to us. We love you all,
Calvin and Janae
Janae has been doing well the past month or so and lately seems to be increasing her stamina day by day. Yesterday we went to the University of Washington for her latest MRI scan. We met with her oncologist, Dr. Rockhill.
He told us that yesterdays scan shows some items of concern. One of the tumors today was the size of your thumbnail. Previously it had not been detected or even tracked because it was so small that it was not a concern. Another one of the tumors that had been treated with the Gamma Knife radiation last October had additional swelling around it and it is too a concern. Dr. Rockhill said this is precisely why he recommends that we have an MRI performed every 3 months so that we can detect any new tumors or any tumors that are growing. The good news is that none of the other seven tumors which were previously treated with the Gamma Knife procedure (last October) have grown. In fact many of them have continued to shrink significantly since the last MRI scan in June.
We are discouraged that any of the tumors have grown at all, but believe it is due to Janae's having had such great results for this entire last 11 1/2 months since her last Gamma Knife procedure. Dr. Rockhill strongly suggests that Janae recieve the Gamma Knife radiation treatment again for the second time. We are in agreement and have made arrangements for this to happen next Thursday, October 9th.
We want you to know that we feel very blessed that her progress has been so significant. We continue to recieve so many kind encouragements and thank all of you for your thoughts and prayers. We know they make a huge difference in the outcome. We are very thankful for each day and for her continued progress in so many ways. We appreciate all of your expressions of love, thoughtfulness, and kindness and we go through these difficult times. Your prayers and friendship mean the world to us. We love you all,
Calvin and Janae
Tuesday, September 28, 2010
Good after noon to all my favorite people....
We have been out of town the last 12 days and it has made me realize how fast time goes. I have missed not keeping up with you. Many of you call me by phone and I guess no news is the best news. I appreciate your prayers and love. I know many think of me still and I feel your concern.
We are going over to Seattle for another MRI on my brain tomorrow. It always makes me a bit nervous to check in but something that certainly needs to be done to know how my progress is going. I have blood work at 10:00, my MRI scan at noon, and then I see my doctor at 2:00. Most of the time they are not running on time so we get out of the hospital around 5 or 6. By the time we get home, it's pretty late. I will let you know my results Thursday morning.
"Ring the bells that still can ring
Forget your perfect offereing
There is a crack in everything
That's how the light gets in."
Love Janae
P.S. Your prayers and fasting would be so great! Thanks again for all you do for our family and mean to us!
We have been out of town the last 12 days and it has made me realize how fast time goes. I have missed not keeping up with you. Many of you call me by phone and I guess no news is the best news. I appreciate your prayers and love. I know many think of me still and I feel your concern.
We are going over to Seattle for another MRI on my brain tomorrow. It always makes me a bit nervous to check in but something that certainly needs to be done to know how my progress is going. I have blood work at 10:00, my MRI scan at noon, and then I see my doctor at 2:00. Most of the time they are not running on time so we get out of the hospital around 5 or 6. By the time we get home, it's pretty late. I will let you know my results Thursday morning.
"Ring the bells that still can ring
Forget your perfect offereing
There is a crack in everything
That's how the light gets in."
Love Janae
P.S. Your prayers and fasting would be so great! Thanks again for all you do for our family and mean to us!
Wednesday, July 28, 2010
Good afternoon to my family and friends,
Nothing new is going on with my health conditions really. My joints are becoming more arthritic. I was born with Children Rhuemotoid? Arthritis and it is kicking in now It's not slowing me down any but causes me quiet a bit of pain especially when I have been still. I don't want pain medicine. It has more side effects that I don't want to worry about. I know I have been very blessed and thank my Heavenly Father for that. I also thank the good doctors who are watching over me.
I don't have another scan until September 29. that makes me a bit nervous but I tell myself to trust in the Lord. He is in charge if I will do what is best for me. I know he will take help me down the path that is mine.
Doctrine & Covenants 84:45 & 46
"For the word of the Lord is truth, and whatsoever is truth is light, and whatso ever is light is Spirit, even the Spirit of Jesus Christ. And the Spirit giveth light to every man that cometh into the world; and the Spirit enlighteneth every man through the world, that hearkeneth to the voice of the Spirit.
I'm so thankful for the Holy Ghost who gives me comfort each day as I call upon him to cheer me up, give me strength and help me to carry on.
Thanks again for you love, prayers and interest in me and my family.
Have a great day!
Janae
Nothing new is going on with my health conditions really. My joints are becoming more arthritic. I was born with Children Rhuemotoid? Arthritis and it is kicking in now It's not slowing me down any but causes me quiet a bit of pain especially when I have been still. I don't want pain medicine. It has more side effects that I don't want to worry about. I know I have been very blessed and thank my Heavenly Father for that. I also thank the good doctors who are watching over me.
I don't have another scan until September 29. that makes me a bit nervous but I tell myself to trust in the Lord. He is in charge if I will do what is best for me. I know he will take help me down the path that is mine.
Doctrine & Covenants 84:45 & 46
"For the word of the Lord is truth, and whatsoever is truth is light, and whatso ever is light is Spirit, even the Spirit of Jesus Christ. And the Spirit giveth light to every man that cometh into the world; and the Spirit enlighteneth every man through the world, that hearkeneth to the voice of the Spirit.
I'm so thankful for the Holy Ghost who gives me comfort each day as I call upon him to cheer me up, give me strength and help me to carry on.
Thanks again for you love, prayers and interest in me and my family.
Have a great day!
Janae
Thursday, July 1, 2010
Good Evening to all my great family and friends:
I have been reminded by three doctors this week how lucky I am which I respond, "it's blessed!" My scan in Seattle was great. No new tumors and they are still shrinking. I had the cancerous mole on my back taken off. It was the size of half my little finger nail. They wanted me back Monday to take more out around it so I had surgery for that and they also open another up that they did three weeks ago to make it cleaner. Both came back this morning beign.
I am feeling better and better. I'm working on my energy, staying out of the sun and trying to get my afternoon nap in. I don't do well without my rest....then who does?
The extended plan now for me is to keep the scans on my body and also my brain and watch it all carefully. Cancer is never too far away but I have the odds for myself and the doctors.
I truly believe in faith and prayers and thank-you for all your thoughts on my behalf.
Love, Janae
"And Alma and his people did not raise to the Lord their God, but did pour out their hearts to him; and he did know the thoughts of their hearts.
And it came to pass that the voice of the lord ccame to them in their afflictions, saying: "Lift up your heads and be of good comfort, for I know of the covenant which ye have made unto me; and I will covenant with my people and deliver them out of bondage.
And I will also ease the burdens which are put upon your shoulders, that even you cannot feel them upon your backs, even while you are in bodage; and this will I do that ye may stand as witnesses for me hereafter, and that ye may know of a surety the I, the Lord God, do visit my people in the afflictions.
And now it came to pass that the burdens which were laid upon Alma and his brethren were made light; yea; the Lord did strengthen them that they could bear up their burdens with ease, and they didi submit cheerfully and with patience to all the will of the Lord.
And it came to pass that so great was their faith and their patience that the voice of the lord came unto them again, saying: Be of good comfort, for on the morrow I will deliver you our of bondage.
Oh, how I love the Book Of Mormon!"
I have been reminded by three doctors this week how lucky I am which I respond, "it's blessed!" My scan in Seattle was great. No new tumors and they are still shrinking. I had the cancerous mole on my back taken off. It was the size of half my little finger nail. They wanted me back Monday to take more out around it so I had surgery for that and they also open another up that they did three weeks ago to make it cleaner. Both came back this morning beign.
I am feeling better and better. I'm working on my energy, staying out of the sun and trying to get my afternoon nap in. I don't do well without my rest....then who does?
The extended plan now for me is to keep the scans on my body and also my brain and watch it all carefully. Cancer is never too far away but I have the odds for myself and the doctors.
I truly believe in faith and prayers and thank-you for all your thoughts on my behalf.
Love, Janae
"And Alma and his people did not raise to the Lord their God, but did pour out their hearts to him; and he did know the thoughts of their hearts.
And it came to pass that the voice of the lord ccame to them in their afflictions, saying: "Lift up your heads and be of good comfort, for I know of the covenant which ye have made unto me; and I will covenant with my people and deliver them out of bondage.
And I will also ease the burdens which are put upon your shoulders, that even you cannot feel them upon your backs, even while you are in bodage; and this will I do that ye may stand as witnesses for me hereafter, and that ye may know of a surety the I, the Lord God, do visit my people in the afflictions.
And now it came to pass that the burdens which were laid upon Alma and his brethren were made light; yea; the Lord did strengthen them that they could bear up their burdens with ease, and they didi submit cheerfully and with patience to all the will of the Lord.
And it came to pass that so great was their faith and their patience that the voice of the lord came unto them again, saying: Be of good comfort, for on the morrow I will deliver you our of bondage.
Oh, how I love the Book Of Mormon!"
Friday, June 25, 2010
Dear family,
Two weeks ago Janae had a full body scan. Later her Wenatchee Oncologist, Dr. Garrison called to tell her that he didn’t see anything in the scan and that everything looked very good. He took a few extra minutes on the phone to tell her, that people just don’t do as well as she has done with brain cancer as advanced as she had. This was great news to hear that she is doing so well. When I visit the doctors with her and see their faces, I can also tell that they feel she is doing marvelous, even far better than they can believe.
Dr. Garrison suggested a couple of weeks ago that she should see a dermatologist just to make sure nothing was happening that would allow the melanoma to grow or expand. As a result of a visit with the Dermatologist, last week Janae had 3 moles on her back removed and tested. Yesterday the dermatologist called her back and told her that one of the moles contains melanoma. She made an appointment for next Monday to have it completely removed including extra material around it just to be safe. This of course has caused Janae a lot of worry.
Janae and I are here at the University of Washington Medical Center. Today she is having blood work done as well as an MRI scan of her brain. We met with her Oncologist, Dr. Rockhill at the U of W. He told us that today’s scan looks about the same as the last time (March 2010) or slightly better. He showed us several of the tumors using the measuring tool on the computer and we could see that they are slightly smaller than last time we reviewed them with him. This is Great News. She is feeling better and getting stronger ever so slowly.
It is so wonderful to have her doing so much better. We feel very blessed that her progress has been so significant. We are very thankful for each day and for her continued progress with the cancer treatments that she has and continues to receive. We appreciate all of your expressions of love, thoughtfulness, and kindness as we go through these difficult times. Your prayers and friendship mean the world to both of us.
We love you all,
Calvin and Janae
Two weeks ago Janae had a full body scan. Later her Wenatchee Oncologist, Dr. Garrison called to tell her that he didn’t see anything in the scan and that everything looked very good. He took a few extra minutes on the phone to tell her, that people just don’t do as well as she has done with brain cancer as advanced as she had. This was great news to hear that she is doing so well. When I visit the doctors with her and see their faces, I can also tell that they feel she is doing marvelous, even far better than they can believe.
Dr. Garrison suggested a couple of weeks ago that she should see a dermatologist just to make sure nothing was happening that would allow the melanoma to grow or expand. As a result of a visit with the Dermatologist, last week Janae had 3 moles on her back removed and tested. Yesterday the dermatologist called her back and told her that one of the moles contains melanoma. She made an appointment for next Monday to have it completely removed including extra material around it just to be safe. This of course has caused Janae a lot of worry.
Janae and I are here at the University of Washington Medical Center. Today she is having blood work done as well as an MRI scan of her brain. We met with her Oncologist, Dr. Rockhill at the U of W. He told us that today’s scan looks about the same as the last time (March 2010) or slightly better. He showed us several of the tumors using the measuring tool on the computer and we could see that they are slightly smaller than last time we reviewed them with him. This is Great News. She is feeling better and getting stronger ever so slowly.
It is so wonderful to have her doing so much better. We feel very blessed that her progress has been so significant. We are very thankful for each day and for her continued progress with the cancer treatments that she has and continues to receive. We appreciate all of your expressions of love, thoughtfulness, and kindness as we go through these difficult times. Your prayers and friendship mean the world to both of us.
We love you all,
Calvin and Janae
Tuesday, June 22, 2010
Good morning to you all! It's a beautiful day today in Rock Island. Ihave been up cleaning the garage and bedrooms. A never ending task I'm afraid. I'm looking forward to my nap.
I was warned by a "friend" that if I didn't keep this up better that I am going to be dumped by her....(thanks Mindy.) A true friend.
I go to Seattle tomorrow for a brain scan. I haven't had one in about 3 months so of course I'm a bit anxious. This last week I went in for a breast exam, had 4 moles that they were supposing were pre-cancerous removed. I go back in next Tuesday to have the sticthes all taken out.
I am feeling good most of the time nowbut don't really know until tomorrow what going on in my head. I have finished 6 months of Chemeo and I'm sure that is one of the reasons I am feeeling better. My lab work that I have done every 2 weeks seems to look good. The doctors are beginning to wonder why I am still here. I tell them I belieeve in miracles and have great people with faith praying for me.
I want to thank you so much....all of you, for thinking of me through cards, calls, and prayers. I really can feel them and think of many of you individually.
May you be blessed in your chanllenges also.
Life really is a precious gift. Find a way to really enjoy your blessings!
my love to each of you,
Janae
"YOU CAN MAKE THE PATHWAY BRIGHT"
You can make the pathway bright, Fill the soul with heaven't light
If there's sunshine in your heart; Turning darkness into day
As the shadow's fly away, If there' sunshine in your heart today.
You can speak the gentle word to the heart with anger stirred,
If thee's sunshine in your heart; Thou it seems a little thing,
It will heaven's blessing bring, If there's sunshine in your heart today.
You can do a kindly deed to your neighbor in his need,
If there's sunshine in your heart, And his burden you will share
As you lifet his load of care, If there's sunshine in your heart today.
You can live a happy life in this world of toil and strife,
If there's sunshine in your heart ; And your soul will glow with love
From the perfect Light above, If there's sunshine in your heart today.
If there's sunshine in your heart, You can send a shining ray that will turn the night to day;
And your cares will all depart, If there's sunshine in your heart today!
Have a great day!
I was warned by a "friend" that if I didn't keep this up better that I am going to be dumped by her....(thanks Mindy.) A true friend.
I go to Seattle tomorrow for a brain scan. I haven't had one in about 3 months so of course I'm a bit anxious. This last week I went in for a breast exam, had 4 moles that they were supposing were pre-cancerous removed. I go back in next Tuesday to have the sticthes all taken out.
I am feeling good most of the time nowbut don't really know until tomorrow what going on in my head. I have finished 6 months of Chemeo and I'm sure that is one of the reasons I am feeeling better. My lab work that I have done every 2 weeks seems to look good. The doctors are beginning to wonder why I am still here. I tell them I belieeve in miracles and have great people with faith praying for me.
I want to thank you so much....all of you, for thinking of me through cards, calls, and prayers. I really can feel them and think of many of you individually.
May you be blessed in your chanllenges also.
Life really is a precious gift. Find a way to really enjoy your blessings!
my love to each of you,
Janae
"YOU CAN MAKE THE PATHWAY BRIGHT"
You can make the pathway bright, Fill the soul with heaven't light
If there's sunshine in your heart; Turning darkness into day
As the shadow's fly away, If there' sunshine in your heart today.
You can speak the gentle word to the heart with anger stirred,
If thee's sunshine in your heart; Thou it seems a little thing,
It will heaven's blessing bring, If there's sunshine in your heart today.
You can do a kindly deed to your neighbor in his need,
If there's sunshine in your heart, And his burden you will share
As you lifet his load of care, If there's sunshine in your heart today.
You can live a happy life in this world of toil and strife,
If there's sunshine in your heart ; And your soul will glow with love
From the perfect Light above, If there's sunshine in your heart today.
If there's sunshine in your heart, You can send a shining ray that will turn the night to day;
And your cares will all depart, If there's sunshine in your heart today!
Have a great day!
Thursday, June 10, 2010
Hello to all my dear friends and family:
I'm a little late on this from yesterday. They canceled my appointment the last minute for my scan and sent me to have a whole body check on my skin....very complete one! I had 6 spots frozen off and one bigger one scrapped and sent in. It looks like I will have s small surgery next week for 3 black funny looking moles on my back. She said they would just take about 4 stitches each so not a big deal. She told me that I need to remind myself that I do not have brain cancer. The cancer has mastatised to my brian, but my cancer is melanoma. She said it could have moved from my skin and chased up to my brain cells while my immune system was trying to stop it. It sounded good to me! That means it may not show up in any of my organs. Notice I said, "may not." Melanomia is such a difficult thing to have. they really don't much about it which makes it so unsure. I feel good about going to Dr. Sequin....now my 6th doctor I can add to my list. They have reschduled my scan in Seattle on June 23rd.
You will hear from me before that! Love you all. Thanks again for you faith and hope and cards.
Janae
P.S. My daughter Bergen is having triples, due on Christmas day but will most likely willgo early.
John 16:7
Nevertheless I tell you the truth; It is expedient for you tha t I go away; for if I go not away, the COMFORTER will not come unto you; but if I depart, I will send him unto you.
I love this scripture. I think it teaches us that the Lord does have have our side for us to establish trust and faith in him, but doesn't leave us alone. We are blessed with the Holy Ghost.
I'm a little late on this from yesterday. They canceled my appointment the last minute for my scan and sent me to have a whole body check on my skin....very complete one! I had 6 spots frozen off and one bigger one scrapped and sent in. It looks like I will have s small surgery next week for 3 black funny looking moles on my back. She said they would just take about 4 stitches each so not a big deal. She told me that I need to remind myself that I do not have brain cancer. The cancer has mastatised to my brian, but my cancer is melanoma. She said it could have moved from my skin and chased up to my brain cells while my immune system was trying to stop it. It sounded good to me! That means it may not show up in any of my organs. Notice I said, "may not." Melanomia is such a difficult thing to have. they really don't much about it which makes it so unsure. I feel good about going to Dr. Sequin....now my 6th doctor I can add to my list. They have reschduled my scan in Seattle on June 23rd.
You will hear from me before that! Love you all. Thanks again for you faith and hope and cards.
Janae
P.S. My daughter Bergen is having triples, due on Christmas day but will most likely willgo early.
John 16:7
Nevertheless I tell you the truth; It is expedient for you tha t I go away; for if I go not away, the COMFORTER will not come unto you; but if I depart, I will send him unto you.
I love this scripture. I think it teaches us that the Lord does have have our side for us to establish trust and faith in him, but doesn't leave us alone. We are blessed with the Holy Ghost.
Tuesday, May 25, 2010
Janae's back
Good day to everyone.
I am feeling so much better and wanted to get myself back on this. First of all I want to thank all of you for your faith, prayers and concern. None of it is takeen lightly on my part. I went to have another scan about 4 months ago in Seattle and it showed that my tumors were getting smaller. It is slow but there weren't any new ones. Patience! Not best attribute. Dr. Rockhill said that I was doing well enough that he didn't want to see me until June. We just got our appointment and will be having another detailed scan on June 9. Please remember that date and I will get on here and remind you to pray for another good scan. I have got myself on some oxygen water that is sell all over the place. I have done some studing on it andI hope it's one of the reason's I am feeling better. I also was introduced to some "Jus" product by my son -in-law. It has resevertrial in it which makes it better than anything drink out in the market. Quite remarkable stuff. It's made me want to sell it and I'm really not into doing all that. Great for Parkinsons, cancer, insomnia, bone density, lung and breathing capacity. Anyway, I can even play the piano again and type this without taking up too much of my time.
I have been so blessed from our Heaven Father, your prayers and putting my name in the temples across the world. Although this has been the toughest time of my life, it has been a time of blessing and learning that I'm not sure I would have learned anyother way.
Thank-you again all my dear friends. I am feeling better and will keep in touch!
Janae
"I KNOW THAT MY REDEEMER LIVES"
I know that my redeemer lives. What comfort this sweet sentence gives!
He lives, he lives, who once was dead.
He lives my ever living Head.
He lives to bless me with his love. He lives to plead for me above.
He lives my hungry soul to feed. He lives to bless in time of need.
He lives to grant me rich supply. He lives to guide me with his eye.
He lives to comfort me when faint. He lives to hear my soul's complaint.
He lives to silence all my fears. He lives to wipe away my tears.
He lives to calm my troubled heart. He lives all blessings to impart.
He lives, my kind, wise heaven'ly Friend. He lives and loves me to the end.
He lives, and while he lives I'll sing. He lives my Prohet, Priest, and KIng.
He lives and grants me daily breath. He lives, and I shall conquer death.
He lives my mansion to prepare. He lives to bring me safely there.
He lives! All glory to his name! He lives, my Savior still the same. Oh, sweet the joy this sentence gives: "I know that my Redeemer lives!"
He lives! All glory to his name! He lives, my Savior, still the same. Oh, sweet the joy this sentence gives: "I know that my Redeemer lives!"
Be grateful and strong because you know that you are loved!
I am feeling so much better and wanted to get myself back on this. First of all I want to thank all of you for your faith, prayers and concern. None of it is takeen lightly on my part. I went to have another scan about 4 months ago in Seattle and it showed that my tumors were getting smaller. It is slow but there weren't any new ones. Patience! Not best attribute. Dr. Rockhill said that I was doing well enough that he didn't want to see me until June. We just got our appointment and will be having another detailed scan on June 9. Please remember that date and I will get on here and remind you to pray for another good scan. I have got myself on some oxygen water that is sell all over the place. I have done some studing on it andI hope it's one of the reason's I am feeling better. I also was introduced to some "Jus" product by my son -in-law. It has resevertrial in it which makes it better than anything drink out in the market. Quite remarkable stuff. It's made me want to sell it and I'm really not into doing all that. Great for Parkinsons, cancer, insomnia, bone density, lung and breathing capacity. Anyway, I can even play the piano again and type this without taking up too much of my time.
I have been so blessed from our Heaven Father, your prayers and putting my name in the temples across the world. Although this has been the toughest time of my life, it has been a time of blessing and learning that I'm not sure I would have learned anyother way.
Thank-you again all my dear friends. I am feeling better and will keep in touch!
Janae
"I KNOW THAT MY REDEEMER LIVES"
I know that my redeemer lives. What comfort this sweet sentence gives!
He lives, he lives, who once was dead.
He lives my ever living Head.
He lives to bless me with his love. He lives to plead for me above.
He lives my hungry soul to feed. He lives to bless in time of need.
He lives to grant me rich supply. He lives to guide me with his eye.
He lives to comfort me when faint. He lives to hear my soul's complaint.
He lives to silence all my fears. He lives to wipe away my tears.
He lives to calm my troubled heart. He lives all blessings to impart.
He lives, my kind, wise heaven'ly Friend. He lives and loves me to the end.
He lives, and while he lives I'll sing. He lives my Prohet, Priest, and KIng.
He lives and grants me daily breath. He lives, and I shall conquer death.
He lives my mansion to prepare. He lives to bring me safely there.
He lives! All glory to his name! He lives, my Savior still the same. Oh, sweet the joy this sentence gives: "I know that my Redeemer lives!"
He lives! All glory to his name! He lives, my Savior, still the same. Oh, sweet the joy this sentence gives: "I know that my Redeemer lives!"
Be grateful and strong because you know that you are loved!
Tuesday, February 23, 2010
Good afternoon everyone, this is Janae. I am pretty slow with my typing and I want you to know it's not because I can't spell. It's because I don't want to turn back and correct all my mistakes.
Yes, Once again I know that I have not been awhile. Hang in there with your faith and prayers. Some days are good, and some not so good where I spend much time at the doctor for something....but overall I am well. I did go to Seattle my last visit and my doctor, Rockhill, told me that 4-5 tumors looked like they were getting smaller. The other 4 had not changed and there was no new ones. I have been very sick the month of November and December, throwing up. He changed my medicine and I have been doing better.
Calvin , my real doctor, took me off my steroids and I think I actually feel better but that causes other problems too. The Olympics are killing my nightly routine. Stacia got married and Jared is a week away.
I want to leave with a scripture from the Book of Mormon:
They shall come to the knowledge of their redeemer and the very points of his doctrine, that they may know to come unto him and be saved. 1 Nephi 15:14
Yes, Once again I know that I have not been awhile. Hang in there with your faith and prayers. Some days are good, and some not so good where I spend much time at the doctor for something....but overall I am well. I did go to Seattle my last visit and my doctor, Rockhill, told me that 4-5 tumors looked like they were getting smaller. The other 4 had not changed and there was no new ones. I have been very sick the month of November and December, throwing up. He changed my medicine and I have been doing better.
Calvin , my real doctor, took me off my steroids and I think I actually feel better but that causes other problems too. The Olympics are killing my nightly routine. Stacia got married and Jared is a week away.
I want to leave with a scripture from the Book of Mormon:
They shall come to the knowledge of their redeemer and the very points of his doctrine, that they may know to come unto him and be saved. 1 Nephi 15:14
Tuesday, January 5, 2010
Everyone, this is Janae. I hate to start with apologizing but I am embarrassed and this is getting harder for me. Let me get you up to date on my health. I went back over to Seattle and learned that the gamma knife had helped. 5 had gotten smaller and the other eight had stayed the same. None had grown and there was no new ones; The doctor and us were thrilled. They said they usually get worse the first time. I've been home for 3 months having chemo one week out of 4 and scans on my organs to see if we can find where it is coming from in my body. I have a scan on Friday and lab work always, it seems, gives my stomach a lot of trouble. I am working hard at this. I couldn't do it without Calvin.
"As I have loved you, love one another.
This new commandment, love one another.
By this shall man know ye are my disciples
If ye have love one to another."
You are all loved by me. Be good people. Thanks for your thoughts, prayers and cards.
Happy new year!
Janae White
"As I have loved you, love one another.
This new commandment, love one another.
By this shall man know ye are my disciples
If ye have love one to another."
You are all loved by me. Be good people. Thanks for your thoughts, prayers and cards.
Happy new year!
Janae White
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